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HDC Newsletter - October 2020

29/10/2020

 
In this issue:
  • New Commissioner Morag McDowell
  • The Mental Health Commissioner's final monitoring and advocacy report
  • Trends in focus: Delays in ED care
  • Profile: youth and Pacific disability advocate Jordon Milroy
  • Mārama Real Time Feedback moves to the Ministry
  • COVID-19 complaint trends

Click here to Read the full October Newsletter

GPNZ Panui 29 October 2020

29/10/2020

 
Click here to view the GPNZ Panui - 29th October 2020

VCMM Stakeholder Update week 16

27/10/2020

 
Click here to view VCMM Stakeholder Update - Week 16

Financial support available for whanau who have tamariki with Down syndrome

27/10/2020

 
Hauraki Waikato Whanau Ora
 
Tena koutou katoa,
 
We're very pleased to update you about important financial support available for whanau in Aotearoa who have tamariki with Down syndrome; we hope that you will share this good news with whanau in your rohe who could benefit from this extra support.
 
Down syndrome is the most common chromosomal condition in the world and every year in Aotearoa between 50 and 80 babies are born with Down syndrome. Research has shown that tamariki with Down syndrome have special physical characteristics that result in many tamariki needing extra help and support with their communication. For this reason the UpsideDowns Education Trust ('UpsideDowns') was created.
continued...
UpsideDowns provides ongoing financial support to help any whanau in Aotearoa who have tamariki with Down syndrome. This support is specifically to help with the costs of private speech therapy for tamariki with Down syndrome. This financial assistance is available to members of UpsideDowns every year from birth up to the age of 21 years.
 
Three funding options available
UpsideDowns  has three different funding options for whanau to access therapy from a private Speech and Language Therapist for their tamariki with Down syndrome. The three funding options are:
 
Option 1: 50% of speech-language therapy costs up to a maximum of $2,000 each year or,
Option 2: 80% of speech-language therapy costs up to a maximum of $1,000 each year or,
Option 3: 100% of speech-language therapy costs up to a maximum of $2,000 each year for whanau experiencing financial hardship (some criteria applies).
 
Speech-Language Therapists are located throughout Aotearoa and they work with tamariki using different approaches for the individual needs of tamariki. Therapists also work in different settings; many Therapists work with tamariki  at their office however some Therapists are able to work with tamariki in their whare, or at a Kohanga Reo, or at a Kura Kaupapa Maori. Some Therapists  also use tele-therapy (e.g. using Skype or Zoom depending on internet access).
 
Keen to know more?
·         Attached is our pamphlet in Te Reo Maori, and in English.
·         Whanau can also apply online https://www.upsidedowns.co.nz/
 
Need help to find a registered Speech Language Therapist?
Occasionally there is a waiting list but once an application is approved by UpsideDowns, whanau can then choose their preferred Speech-Language Therapist from hundreds of Therapists registered with the NZ Speech Therapy Association (NZTA). Although UpsideDowns are not able to recommend a particular Therapist, UpsideDowns are happy to help any whanau who might need a bit of help in  identifying a locally based (NZTA-registered) Speech-Language Therapist or a Therapist who is familiar working with tamariki with Down syndrome.
 
Any other information we can help you with?
More information about Down syndrome and the UpsideDowns Education Trust is on our website -  https://www.upsidedowns.co.nz/
However if you would like to talk to us about UpsideDowns and our three funding options please contact us by phone 020 4077 2400, or by email on info@upsidedowns.co.nz
 
Nga mihi nui,
 
Solitaire Henare
Outreach Coordinator

Click here for the Te Reo brochure for Parents
Click here for the English brochure for Parents

Diabetes Talk New Zealand

23/10/2020

 
Click here for the Diabetes New Zealand - Issue 04

Media Piece on HPHO and our three Kaupapa Māori Providers

19/10/2020

 
Click here for the media piece that will be released on the General Practice New Zealand website, NZ Doctor and Māori TV

Children's Autism Foundation are coming to Hamilton

15/10/2020

 
Click here for more information

GPNZ Panui 15 October 2020

15/10/2020

 
Click here for the GPNZ Panui - 15th October 2020

Register now for Ō tātou hiranga I What matters to us

15/10/2020

 
Tēnā koe
 
Registrations for the Ō tātou hiranga I What matters to us hui are coming in thick and fast. Make sure you register, to avoid missing out.
Picture
Continued...
A fully online event, it is the only national hui about advance care planning and shared decision making. The previous hui, held in 2017 in Auckland, was attended by around 250 people. This year’s hui has a strong focus on equity, and features speakers from Aotearoa and overseas.
 
First up is keynote speaker Hector Matthews, executive director Māori and Pacific Health, Canterbury DHB. The title of Hector’s presentation is ‘Māori lives matter’. Hector will challenge us to confront some uncomfortable truths about inequity, and encourage exploring ways we can truly place people’s cultural frameworks at the centre of their care and wellbeing.
 
Later in the afternoon we will hear from London-based Dr Kathryn Mannix, who asks ‘How can we reclaim ordinary dying?’ Kathryn worked in palliative care for 30 years, before taking early retirement to work for better public understanding about dying. Her first book, With the End in Mind, was shortlisted for the Wellcome Book Prize.
 
The hui will be an engaging and thoughtful two days of discussions and exploration about our role in making what matters most to our patients and their whānau the centre of our health care planning and delivery.
 
To see the whole programme, and to register, go to the event website
 
Look forward to seeing you there!
Ngā mihi nui
National advance care planning team


HiNZ-Nursing Informatics Group Newsletter 13 October 2020

13/10/2020

 
Click here to view the HiNZ Newsletter - 13th October 2020

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